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December, 2007
In October 2008 Aussie Nevus
families will meet In Sydney.
The 2008 Nevus Support Australia Conference (The Big Bash) will be held from Thursday 2 October to Sunday 5 October 2008 in Sydney, Australia.
This is the third conference held in Australia since 2004 to provide support and information to people affected by Congenital Melanocytic Naevi (CMN) and most importantly, to enable us to meet face to face and share experiences, concerns and knowledge.
We are preparing a program which will include presentations from a range of health professionals (paediatric plastic surgeon, laser specialist, dermatologist, psychologist, art therapist) as well as opportunities for facilitated small group discussions on the psychological and social issues affecting people with CMN and their families and friends.
Of course, there will also be plenty of time to relax and socialise, and enjoy some of Sydney’s attractions (such as the Taronga Zoo and Luna Park.
May 2007
40th Annual Scientific
Meeting of the Australasian College of Dermatologists
Wow, we were very
fortunate to be invited to exhibit at the conference.
What an amazing
opportunity to share the Nevus message.
Over 250 leading Dermatologists from
Australasia gathered in Adelaide for the four day conference.
A special friend of Nevus support and
one of Adelaide's most respected dermatologists Dr Warren presented a workshop
on Nevi to the attendees.
The presentation and
our attendance at the conference has created great interest from participants
and exhibitors.
Marilyn and Michelle
January 2006
Aussie Nevus families meet In Melbourne.
In January families from around Australia met in Melbourne for the second conference of Nevus families called the Big Bash ....
July, 2006
'Science our hope'
Scientific research commissioned by Nevus Outreach indicates we can interrupt the reproduction of melanocytes, we are sitting on research that has the potential to help a great number of patients with melanocyte related conditions.
Research is considerably costly and for the medical world to find a cure we need financial support.
Please also register with our friends at Nevus Outreach, an American based support group who work in collaboration with us to further understanding and research this condition.
Nevus Support Australia needs your help.
We need funds to maintain our services and to support research into pigmented skin conditions and associated conditions including melanoma, NCM and hydrocephaly.
Nevus Support Australia Inc. is a registered Not for Profit, tax deductible charity. ABN: 23543860400
We also need donations of goods in kind to provide practical and moral support to our families.
If you are in a position to offer financial support
or are able to offer things like .....
Nevus Support Australia Inc is run entirely by volunteers.
No staff member is paid and all profits go to supporting our members.
About Nevus Support
In November 2001 our daughter Danielle was born with a birthmark condition called Congenital Melanocytic Naevus.
We thought we were the only ones dealing with this condition. We were afraid and felt very alone, we wanted to know how to help her with this condition. There was no support group available in Australia. What we needed most was to talk to other families who had been in the same position that we now found ourselves.
Not content to give up we continued searching for answers and with the help of an American support group Nevus Outreach and a social worker from the Adelaide Women's and Childrens Hospital we eventually made contact with several families in Australia who also had children with this condition.
As we spoke to the families we had made contact with it became apparent that everyone had had similar experiences of isolation and a desire to connect with other families.
In 2002 the concept of Nevus Support
Australia blossomed and by January 2004 we were holding our first National
conference in Adelaide and released our first print brochure about the condition
and our group to doctors offices and major hospital all around the country.
Today Nevus Support Australia Inc. is a registered Not for Profit, tax
deductible charity. We have a membership of over 50 families which is growing
weekly and incorporates New Zealand and southern Asia.
We are working collaboratively with support groups and researchers around the
world and holding regular bi annual conferences so that our very special
families can meet each other and share in their journeys.
We produce regular newsletters and of course run this website. New families are
now referred to us by medical professionals or locate us via this website and
our hope is that no one ever feels totally alone with this condition again...
July 2006
Dallas Texas USA ... I was fortunate to attend the conference in July and would
like to share my experience with you...
Nevus families at the conference
What we
are doing ....
Nevus Outreach Conference.
Copyright 2007 Nevus Support Australia
ABN: 23543860400